We Have MS

MS Support Group for those in the US and Beyond

gkygrl
  • Female
  • Malta, NY
  • United States
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SSDI, Long-Term Disability, Veterans Benefits, etc ....
1 Reply

Started this discussion. Last reply by gkygrl Apr. 20, 2008.

How many of you are affected by COLD temperatures??
3 Replies

Started this discussion. Last reply by 17thEngineer2AD Aug. 8, 2008.

 

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Latest Activity

gkygrl left a comment for Jenn
August 10
Jenn left a comment for gkygrl
August 7
Jenn and gkygrl are now friends
August 7
August 5
gkygrl left a comment for Jenn
August 5
August 5
June 18
hi, im only 24 and this has started happening to me, and i am pretty scared
June 14

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At 11:30am on August 7, 2009, Jenn said…
Thank you, Diana, for the invite and the welcome. I am a stay-at-home mom with two small boys (ages 3 & 5... UGH!!) and I have been living with MS and treating (Rebif) for almost two years now. We cannot afford insurance, so I've had no doctor care. I am rather exhausted with being in this ocean of uncertainty all alone. I would appreciate communicating with someone who knows a bit of what I'm feeling.

Thank you,
Jenn
At 1:25am on June 18, 2009, Akrista said…
Hi Diana,

How are you? It's good to see you here. Just wanted to let you know that I updated your interview page - www.life-in-spite-of-ms.com/dianadeavila.html - I add another link to your site here, We Have MS.

I also removed the link to "chicgeek - ecrater" because it wasn't working. Do you have another place where you sell your teas? If so, send it to me and I will add it to your page. If you've moved on to something else, let me know and I will add that instead.

Wishing you all the best,
Akrista

Profile Information

What type of MS do you have?
RRMS
Do you currently take MS Disease modifying medication (Copaxone, Rebif, etc.)?
Yes

MS is a journey ... not a destination. Grab life with all your might!

I've done a lot of different things in my life, but I feel that a lot of those things don't really matter as much to me now as they did when I was doing them. I've been in the military, been in religious life (how many people can say that in the same sentence), been employed by one of the largest companies in the world (GE) as a web architect, and am now retired due to MS.

MS has a way of putting the brakes on things and making you think twice about other things. I find my daily energy is much like the money in my bank account: limited and worthy of priorities. I find that I want to use my energy for different things now instead of digging my heels into those things like climbing the corporate ladder and getting a Ph.D. Now my days are much more simple and less stressed. My job is taking care of my health and maintaining it at a level so that I can actually enjoy some of the things I love to do and learn how to pursue hobbies again. Life is not stressful anymore and I feel blessed.

I am currently on long-term disability from GE and the Veterans Administration. I received "service-connected disability" for MS from the VA and they take care of me. I choose to get most of my health care through VA Hospitals (I am the queen of auto-immune disorders and recently had a total-thyroidectomy due to Hashimoto's Thyroid Disease.).

My newest venture is martial arts. I have begun studying a system called Combat Hapkido and am considering adding Tae Kwon Do in the future. I love martial arts - it challenges me in every way possible and allows me to exercise mentally and physically. I very much feel that "indomitable spirit" somehow expresses the best way to traverse a journey with MS.

I spend time maintaining various websites on MS (like this one) and blogs:

http://www.squidoo.com/ms_friends
http://msplaques.blogspot.com (personal MS journey)

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